<?xml version="1.0" encoding="ISO-8859-1"?><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance">
<front>
<journal-meta>
<journal-id>2664-2891</journal-id>
<journal-title><![CDATA[Revista científica ciencias de la salud]]></journal-title>
<abbrev-journal-title><![CDATA[Rev. cient. cienc. salud]]></abbrev-journal-title>
<issn>2664-2891</issn>
<publisher>
<publisher-name><![CDATA[Universidad del Pacífico]]></publisher-name>
</publisher>
</journal-meta>
<article-meta>
<article-id>S2664-28912023000100009</article-id>
<article-id pub-id-type="doi">10.53732/rccsalud/2023.e5108</article-id>
<title-group>
<article-title xml:lang="es"><![CDATA[Apoyo, Desafíos y Oportunidades de una Persona con el Trastorno del Espectro Autista en Paraguay: Análisis desde la Perspectiva de los Padres]]></article-title>
<article-title xml:lang="en"><![CDATA[Support, Challenges, and Opportunities for a Person with Autism Spectrum Disorder in Paraguay: Analysis from the Parents' Perspective]]></article-title>
</title-group>
<contrib-group>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Rodas-Jara]]></surname>
<given-names><![CDATA[Ronaldo L]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Franco]]></surname>
<given-names><![CDATA[Nancy Mabel]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Rodas-Jara]]></surname>
<given-names><![CDATA[Liza R]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Franco]]></surname>
<given-names><![CDATA[Fabián]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Gómez-Leiva]]></surname>
<given-names><![CDATA[Edgar]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Villalba-Salinas]]></surname>
<given-names><![CDATA[Diana]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Chromey]]></surname>
<given-names><![CDATA[Nancy]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Torales]]></surname>
<given-names><![CDATA[Julio C]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Báez]]></surname>
<given-names><![CDATA[Diana]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
</contrib-group>
<aff id="Af1">
<institution><![CDATA[,Universidad Santa Clara de Asís Facultad de Ciencias de la Salud ]]></institution>
<addr-line><![CDATA[Caaguazú ]]></addr-line>
<country>Paraguay</country>
</aff>
<aff id="Af2">
<institution><![CDATA[,Universidad Nacional de Asunción Facultad de Ciencias Económicas ]]></institution>
<addr-line><![CDATA[San Lorenzo ]]></addr-line>
<country>Paraguay</country>
</aff>
<aff id="Af3">
<institution><![CDATA[,Universidad María Serrana Facultad de Ciencias de la Salud ]]></institution>
<addr-line><![CDATA[Asunción ]]></addr-line>
<country>Paraguay</country>
</aff>
<aff id="Af4">
<institution><![CDATA[,Asociación de Padres y/o Tutores con una persona con autismo en Paraguay  ]]></institution>
<addr-line><![CDATA[ ]]></addr-line>
<country>Paraguay</country>
</aff>
<aff id="Af5">
<institution><![CDATA[,Universidad Nacional de Asunción Facultad de Ciencias Médicas ]]></institution>
<addr-line><![CDATA[San Lorenzo ]]></addr-line>
<country>Paraguay</country>
</aff>
<aff id="Af6">
<institution><![CDATA[,Guiarte, Centro de Atención Integral  ]]></institution>
<addr-line><![CDATA[Asunción ]]></addr-line>
<country>Paraguay</country>
</aff>
<pub-date pub-type="pub">
<day>00</day>
<month>00</month>
<year>2023</year>
</pub-date>
<pub-date pub-type="epub">
<day>00</day>
<month>00</month>
<year>2023</year>
</pub-date>
<volume>5</volume>
<fpage>9</fpage>
<copyright-statement/>
<copyright-year/>
<self-uri xlink:href="http://scielo.iics.una.py/scielo.php?script=sci_arttext&amp;pid=S2664-28912023000100009&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.iics.una.py/scielo.php?script=sci_abstract&amp;pid=S2664-28912023000100009&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.iics.una.py/scielo.php?script=sci_pdf&amp;pid=S2664-28912023000100009&amp;lng=en&amp;nrm=iso"></self-uri><abstract abstract-type="short" xml:lang="es"><p><![CDATA[RESUMEN Introducción. El Trastorno del Espectro Autista (TEA) es un trastorno de origen neurobiológico con alta prevalencia, cuyos retos personales y familiares comienzan desde edades tempranas y dura para toda la vida. Objetivo. Examinar el nivel de apoyo, desafíos y oportunidades de las personas con autismo desde la perspectiva de los padres en Paraguay, mediante un estudio con enfoque cualitativo utilizando la fenomenología hermenéutica y alcance exploratorio. Metodología. La recolección de datos se realizó a través de grupos focales y mapeo de vida. En los grupos focales participaron 46 padres y/o tutores de personas con TEA de 20 ciudades del país. En el mapeo de vida participaron 5 madres de área Central. Resultados. Las familias que tienen un hijo con autismo en Paraguay reciben apoyo generalmente del microsistema que son los abuelos, parientes y amigos. Ellas perciben un cambio en la dinámica familiar, así también enfatizan la imperiosa necesidad de contar con instituciones y profesionales capacitados para proveer servicios de estimulación temprana, instituciones educativas más inclusivas, y la promoción de espacios y oportunidades de cuidados del cuidador, además la falta de oportunidades de formación y laboral para adultos con TEA en Paraguay. Conclusión. Estos hallazgos podrían servir de base para el desarrollo de programas específicos y para el diseño de futuras políticas públicas, con el propósito de mejorar la calidad de vida de las personas con autismo en Paraguay.]]></p></abstract>
<abstract abstract-type="short" xml:lang="en"><p><![CDATA[ABSTRACT Introduction. Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder with high prevalence, whose personal and family challenges begin at an early age and are for life. Objective. To examine the level of support, challenges, and opportunities of people with autism from the perspective of their parents in Paraguay, using a qualitative approach and applying hermeneutic phenomenology at an exploratory level. Methodology. Data collection was carried out through focus groups and Journey Mapping. Forty-six parents and/or guardians of people with ASD from 20 cities in the country participated in the focus groups, and five mothers from the Capital in the Journey Mapping. Results. Families who have a child with autism in Paraguay generally receive support from the microsystem such as grandparents, relatives, and friends. They perceive a change in the family dynamics and they also emphasize the urgent need for institutions and trained professionals to provide early intervention services, more inclusive educational schools, and the promotion of spaces and opportunities for caregiver care. Conclusion. These findings may serve as a basis for the development of specific programs and for the design of future public policies, with the purpose of improving the quality of life of people with autism in Paraguay.]]></p></abstract>
<kwd-group>
<kwd lng="es"><![CDATA[trastorno del espectro autista]]></kwd>
<kwd lng="es"><![CDATA[Paraguay]]></kwd>
<kwd lng="es"><![CDATA[padres]]></kwd>
<kwd lng="en"><![CDATA[autism spectrum disorder]]></kwd>
<kwd lng="en"><![CDATA[Paraguay]]></kwd>
<kwd lng="en"><![CDATA[parents]]></kwd>
</kwd-group>
</article-meta>
</front><back>
<ref-list>
<ref id="B1">
<label>1</label><nlm-citation citation-type="book">
<collab>Association AP</collab>
<source><![CDATA[Diagnostic and Statistical Manual of Mental Disorders]]></source>
<year>2013</year>
<edition>5th</edition>
<publisher-loc><![CDATA[Arlington ]]></publisher-loc>
<publisher-name><![CDATA[American Psychiatric Association Publishing]]></publisher-name>
</nlm-citation>
</ref>
<ref id="B2">
<label>2</label><nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Baio]]></surname>
<given-names><![CDATA[J]]></given-names>
</name>
<name>
<surname><![CDATA[Wiggins]]></surname>
<given-names><![CDATA[L]]></given-names>
</name>
<name>
<surname><![CDATA[Christensen]]></surname>
<given-names><![CDATA[DL]]></given-names>
</name>
<name>
<surname><![CDATA[Maenner]]></surname>
<given-names><![CDATA[MJ]]></given-names>
</name>
<name>
<surname><![CDATA[Daniels]]></surname>
<given-names><![CDATA[J]]></given-names>
</name>
<name>
<surname><![CDATA[Warren]]></surname>
<given-names><![CDATA[Z]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years- Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2014]]></article-title>
<source><![CDATA[MMWR Surveill Summ]]></source>
<year>2018</year>
<volume>67</volume>
<numero>6</numero>
<issue>6</issue>
<page-range>1-23</page-range></nlm-citation>
</ref>
<ref id="B3">
<label>3</label><nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Elsabbagh]]></surname>
<given-names><![CDATA[M]]></given-names>
</name>
<name>
<surname><![CDATA[Divan]]></surname>
<given-names><![CDATA[G]]></given-names>
</name>
<name>
<surname><![CDATA[Koh]]></surname>
<given-names><![CDATA[YJ]]></given-names>
</name>
<name>
<surname><![CDATA[Kim]]></surname>
<given-names><![CDATA[YS]]></given-names>
</name>
<name>
<surname><![CDATA[Kauchali]]></surname>
<given-names><![CDATA[S]]></given-names>
</name>
<name>
<surname><![CDATA[Marcín]]></surname>
<given-names><![CDATA[C]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[Global Prevalence of Autism and Other Pervasive Developmental Disorders]]></article-title>
<source><![CDATA[Autism Res.]]></source>
<year>2012</year>
<volume>5</volume>
<numero>3</numero>
<issue>3</issue>
<page-range>160-79</page-range></nlm-citation>
</ref>
<ref id="B4">
<label>4</label><nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Ghanizadeh]]></surname>
<given-names><![CDATA[A]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[A Preliminary Study on Screening Prevalence of Pervasive Developmental Disorder in Schoolchildren in Iran]]></article-title>
<source><![CDATA[J Autism Dev Disord]]></source>
<year>2007</year>
<volume>38</volume>
<numero>4</numero>
<issue>4</issue>
<page-range>759-63</page-range></nlm-citation>
</ref>
<ref id="B5">
<label>5</label><nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Christensen]]></surname>
<given-names><![CDATA[D]]></given-names>
</name>
<name>
<surname><![CDATA[Bilder]]></surname>
<given-names><![CDATA[D]]></given-names>
</name>
<name>
<surname><![CDATA[Zahorodny]]></surname>
<given-names><![CDATA[W]]></given-names>
</name>
<name>
<surname><![CDATA[Pettygrove]]></surname>
<given-names><![CDATA[S]]></given-names>
</name>
<name>
<surname><![CDATA[Durkin]]></surname>
<given-names><![CDATA[M]]></given-names>
</name>
<name>
<surname><![CDATA[Fitzgerald]]></surname>
<given-names><![CDATA[R]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[Prevalence and characteristics of autism spectrum disorder among 4-year-old children in the autism and Developmental Disabilities Monitoring Network]]></article-title>
<source><![CDATA[J Dev Behav Pediatr]]></source>
<year>2016</year>
<volume>37</volume>
<numero>1</numero>
<issue>1</issue>
<page-range>1-8</page-range></nlm-citation>
</ref>
<ref id="B6">
<label>6</label><nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Maenner]]></surname>
<given-names><![CDATA[MJ]]></given-names>
</name>
<name>
<surname><![CDATA[Warren]]></surname>
<given-names><![CDATA[Z]]></given-names>
</name>
<name>
<surname><![CDATA[Williams]]></surname>
<given-names><![CDATA[AR]]></given-names>
</name>
<name>
<surname><![CDATA[Amoakohene]]></surname>
<given-names><![CDATA[E]]></given-names>
</name>
<name>
<surname><![CDATA[Bakian]]></surname>
<given-names><![CDATA[AV]]></given-names>
</name>
<name>
<surname><![CDATA[Bilder]]></surname>
<given-names><![CDATA[DA]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020]]></article-title>
<source><![CDATA[MMWR Surveill Summ]]></source>
<year>2023</year>
<volume>72</volume>
<numero>2</numero>
<issue>2</issue>
<page-range>1-14</page-range></nlm-citation>
</ref>
<ref id="B7">
<label>7</label><nlm-citation citation-type="book">
<collab>World Health Organization</collab>
<source><![CDATA[Meeting report: Autism spectrum disorders and other developmental disorders: From raising awareness to building capacity]]></source>
<year>2013</year>
<publisher-loc><![CDATA[Genova ]]></publisher-loc>
<publisher-name><![CDATA[WHO]]></publisher-name>
</nlm-citation>
</ref>
<ref id="B8">
<label>8</label><nlm-citation citation-type="">
<source><![CDATA[LEY N°6103. Crea el programa nacional de atención integral a los trastornos del espectro autista (PNAITEA) para el abordaje integral e interdisciplinario y la protección social de las personas que presentan trastornos del espectro autista (TEA)]]></source>
<year>2018</year>
</nlm-citation>
</ref>
<ref id="B9">
<label>9</label><nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Lygnegard]]></surname>
<given-names><![CDATA[F]]></given-names>
</name>
<name>
<surname><![CDATA[Donohue]]></surname>
<given-names><![CDATA[D]]></given-names>
</name>
<name>
<surname><![CDATA[Bornman]]></surname>
<given-names><![CDATA[GM]]></given-names>
</name>
<name>
<surname><![CDATA[Huus]]></surname>
<given-names><![CDATA[K]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[A Systematic Review of Generic and Special Education Needs of Children with Disabilities living with Poverty Settings in Low and Middle-Income Countries]]></article-title>
<source><![CDATA[Journal of Policy Practice]]></source>
<year>2013</year>
<volume>12</volume>
<numero>4</numero>
<issue>4</issue>
</nlm-citation>
</ref>
<ref id="B10">
<label>10</label><nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Hastings]]></surname>
<given-names><![CDATA[RP]]></given-names>
</name>
<name>
<surname><![CDATA[Robertson]]></surname>
<given-names><![CDATA[J]]></given-names>
</name>
<name>
<surname><![CDATA[Yasamy]]></surname>
<given-names><![CDATA[MT]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[Interventions for children with pervasive developmental disorders in low and middle income countries]]></article-title>
<source><![CDATA[Journal of Applied Research in Intellectual Disabilities]]></source>
<year>2012</year>
<volume>25</volume>
<numero>2</numero>
<issue>2</issue>
<page-range>119-34</page-range></nlm-citation>
</ref>
<ref id="B11">
<label>11</label><nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Hastings]]></surname>
<given-names><![CDATA[RP]]></given-names>
</name>
<name>
<surname><![CDATA[Kovshoff]]></surname>
<given-names><![CDATA[H]]></given-names>
</name>
<name>
<surname><![CDATA[Ward]]></surname>
<given-names><![CDATA[N]]></given-names>
</name>
<name>
<surname><![CDATA[Fd]]></surname>
<given-names><![CDATA[Espinosa]]></given-names>
</name>
<name>
<surname><![CDATA[Brown]]></surname>
<given-names><![CDATA[T]]></given-names>
</name>
<name>
<surname><![CDATA[Remington]]></surname>
<given-names><![CDATA[B]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism]]></article-title>
<source><![CDATA[J Austim Dev Disord]]></source>
<year>2005</year>
<volume>35</volume>
<numero>5</numero>
<issue>5</issue>
<page-range>635-44</page-range></nlm-citation>
</ref>
<ref id="B12">
<label>12</label><nlm-citation citation-type="book">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Van Manen]]></surname>
<given-names><![CDATA[M]]></given-names>
</name>
</person-group>
<source><![CDATA[Researching the lived experience: Human sciences for an action sensitive pedagogy]]></source>
<year>1990</year>
<page-range>78-135</page-range><publisher-loc><![CDATA[London ]]></publisher-loc>
<publisher-name><![CDATA[The Althouse Press]]></publisher-name>
</nlm-citation>
</ref>
<ref id="B13">
<label>13</label><nlm-citation citation-type="">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Bronfenbrenner]]></surname>
<given-names><![CDATA[U]]></given-names>
</name>
</person-group>
<source><![CDATA[Recent advances in research on the ecology of human development]]></source>
<year>1986</year>
</nlm-citation>
</ref>
<ref id="B14">
<label>14</label><nlm-citation citation-type="book">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Pane Solis]]></surname>
<given-names><![CDATA[J]]></given-names>
</name>
<name>
<surname><![CDATA[Burt]]></surname>
<given-names><![CDATA[M]]></given-names>
</name>
<name>
<surname><![CDATA[Hammler]]></surname>
<given-names><![CDATA[K]]></given-names>
</name>
</person-group>
<source><![CDATA[Using Group Dramas and Client Journey Mapping to Evaluate Empowerment Outcomes in a Poverty Alleviation Program in Paraguay]]></source>
<year>2019</year>
<publisher-loc><![CDATA[London ]]></publisher-loc>
<publisher-name><![CDATA[In Human Development and Capabilities Association Conference]]></publisher-name>
</nlm-citation>
</ref>
<ref id="B15">
<label>15</label><nlm-citation citation-type="book">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Ritchie]]></surname>
<given-names><![CDATA[J]]></given-names>
</name>
<name>
<surname><![CDATA[Spencer]]></surname>
<given-names><![CDATA[L]]></given-names>
</name>
</person-group>
<source><![CDATA[Qualitative Data Analysis for Applied Policy Research]]></source>
<year>1994</year>
<publisher-name><![CDATA[Analyzing Qualitative Data]]></publisher-name>
</nlm-citation>
</ref>
<ref id="B16">
<label>16</label><nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Bitsika]]></surname>
<given-names><![CDATA[V]]></given-names>
</name>
<name>
<surname><![CDATA[Sharpley]]></surname>
<given-names><![CDATA[CF]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[Self- vs Parent Reports of Generalised Anxiety Disorder Symptomatology in Mildly Impaired Girls with an Autism Spectrum Disorder]]></article-title>
<source><![CDATA[J Autism Dev Disord]]></source>
<year>2020</year>
<volume>50</volume>
<numero>3</numero>
<issue>3</issue>
<page-range>1045-55</page-range></nlm-citation>
</ref>
<ref id="B17">
<label>17</label><nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Hilton]]></surname>
<given-names><![CDATA[CL]]></given-names>
</name>
<name>
<surname><![CDATA[Ratcliff]]></surname>
<given-names><![CDATA[K]]></given-names>
</name>
<name>
<surname><![CDATA[Hong]]></surname>
<given-names><![CDATA[I]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[Predictors of Participation Difficulties in Autistic Children]]></article-title>
<source><![CDATA[Am J Occup Ther]]></source>
<year>2023</year>
<volume>77</volume>
<numero>2</numero>
<issue>2</issue>
<page-range>7702205010</page-range></nlm-citation>
</ref>
<ref id="B18">
<label>18</label><nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Waldman]]></surname>
<given-names><![CDATA[J]]></given-names>
</name>
<name>
<surname><![CDATA[McPaul]]></surname>
<given-names><![CDATA[A]]></given-names>
</name>
<name>
<surname><![CDATA[Jahoda]]></surname>
<given-names><![CDATA[A]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[A comparison of the content and nature of worries of autistic and neurotypical young people as they transition from school]]></article-title>
<source><![CDATA[Autism]]></source>
<year>2023</year>
<volume>27</volume>
<numero>3</numero>
<issue>3</issue>
<page-range>667-78</page-range></nlm-citation>
</ref>
<ref id="B19">
<label>19</label><nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Gao]]></surname>
<given-names><![CDATA[L]]></given-names>
</name>
<name>
<surname><![CDATA[Liu]]></surname>
<given-names><![CDATA[XN]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[Status Quo and Advanced Progress in Oral Health Care and Treatment of Children with Autism Spectrum Disorder: A Literature Review]]></article-title>
<source><![CDATA[Chin J Dent Res.]]></source>
<year>2022</year>
<volume>25</volume>
<numero>4</numero>
<issue>4</issue>
<page-range>251-9</page-range></nlm-citation>
</ref>
</ref-list>
</back>
</article>
