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Pediatría (Asunción)

versão On-line ISSN 1683-9803


RADICE, Romina Paola; RADICE, Oscar Augusto; RADICE, Mélani Rebeca  e  RADICE, César Augusto. Quality of life in adolescents aged 14 to 18 years with cystic fibrosis at the cystic fibrosis foundation, Paraguay. Pediatr. (Asunción) [online]. 2020, vol.47, n.3, pp.159-164. ISSN 1683-9803.


Cystic fibrosis is a chronic disease of relative frequency, with repercussions on the quality of life of those who suffer from it. The objective of this study was to analyze the quality of life of adolescents aged 14 to 18 years with cystic fibrosis, at the Cystic Fibrosis Foundation of Paraguay.

Materials and Methods:

The study was carried out in adolescents 14 to 18 years old, who were outpatients at the Cystic Fibrosis Foundation of Paraguay, and who completed the CFQ-R questionnaire on their own. An observational, descriptive, prospective and cross-sectional design was applied. Data loading, analysis and editing was performed using the CFQ-R Scoring Program.


The mean age was 15 years and the standard deviation was 1.52, with 71.4% women and 28.6% men. The level of education that predominated was high school. Regarding general domain scores, the highest mean score corresponded to emotional state, and the mean with the lowest score was vitality. With regards to specific domains, the highest mean score corresponded to digestive symptoms, and the lowest mean score was treatment burden.


The lowest score corresponded to vitality in the general domain and the lowest score in the specific domain was the treatment burden.

Palavras-chave : Quality of life; cystic fibrosis; adolescents..

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